Futile care theory is something going on in many parts of the world, including the United States. The essence of futile care theory is that doctors have the right to cut off, or withhold wanted medical care to the cognitively impaired, based on a personal value judgment that their life is not worth preserving, because their life is not worth living.
While I find this practice unethical, those in support of futile care theory make a persuasive case that can beguile the public. Consider bioethicist Arthur Schafer. In the Winnepeg Free Press he wrote:
Inevitably, doctors are the gatekeepers for patient access to medical resources. You can’t obtain restricted medicines unless a doctor is willing to write a prescription; you can’t gain admission to hospital unless a doctor decides that you will benefit thereby. There is a scarcity of intensive care beds; so, to admit or keep patients in the ICU who cannot benefit is to rob others who could benefit. Put simply, one person’s provision is another person’s deprivation. It’s unethical to waste scarce life-saving resources.
If a patient will never again know who or where he is, as appears to be the case for Golobchuk [a Canadian man who is the subject of a legal battle because doctors want to deprive him of medical care], then to artificially prolong his breathing seems at best a waste of precious ICU resources and at worst a cruel ordeal for the patient. Doctors and nurses are not simply technicians providing marketplace services to customers. They are health-care professionals who are bound by the ethical obligation “first of all, do no harm.” When a patient has irreversibly lost self-awareness, then using medical high technology in a vain attempt to resist death is often experienced by doctors and nurses as both unprofessional and deeply demoralizing. Physician integrity includes the right, even the duty, to say “no” when treatments offer no genuine benefit to the patient.
Schafer’s argument is very utilitarian and pragmatic, and this appeals to Westerners (who are very utilitarian and pragmatic). So what is wrong with it? Wesley Smith, a lawyer and long-time advocate against euthanasia and futile care points out the flaws:
Forget for the moment the many times doctors have been wrong about people never regaining consciousness. Schafer is the one de-professionalizing medicine. A plumber can refuse to unclog a pipe, but a doctor has no right to abandon his or her patient. Moreover, Schafer wants doctors to impose their value judgments–as instructed in continuing education clases by bioethicists like Schafer–that the burden of treatment isn’t worth the benefit of continuing to live. But that isn’t a medical judgment, it is a value judgment that we have always been told resides with the patient and family. Moreover, the treatment isn’t being stopped because it doesn’t or might not work but because it does or will–and hence it is not really a “vain attempt to resist death,” but a potentially successful one. And thus it is really the patient who has been declared futile.
Schafer says that staying alive when that is what the patient wants offers no genuine benefit to the patient. He only has the right to make that claim for himself, not for Mr. Golobchuck, you, me, or anyone else. You are watching the redefining of the ultimate purpose of medicine before your very eyes. It isn’t keeping patients alive who want to live, it is treating those who can be cured and reserving the right to refuse service to those who probably won’t improve.
This is what socialized medicine–and its’ private equivalent the HMO–creates. Medical futility is health care rationing that pits one cadre of patients against others, leading to division and discord. It is the end of trust in medicine because if you are too sick or profoundly disabled, medicine wants little to do with you.
Finally, if Futile Care Theory prevails, what in the world makes anyone think that the forced removal of people from wanted treatment will stop at the ICU? People who only need feeding tubes will soon be dehydrated (if they are not lethally injected first), and care will be rationed based on other criteria. For example, as reported in my books, I once asked a futilitiarian what would come after futile care, since cutting off the dying would not save a lot of money. He immediately said restricting “marginally beneficial care.” I asked for an example. He responded, “An 80-year-old woman who wants a mammagram.”
Be afraid. Be very afraid.
Well said.
February 27, 2008 at 10:03 am
To start, let me say the premise of Futile Care Theory is wrong. Those of us who advocate curtailing, after due deliberation, Futile Medical Interventions do care for the patient and the family. We feel that certain treatments cause discomfort and emotional trauma at a time when comfort, care and peace would help all concerned.
I support Arthur Shafer’s point of view from the humanitarian and utilitarian perspective. Especially with regard to use of precious resources (beds, blood products and trained personnel) on patients who have no chance of recovery with a meaningful quality of life. In our hospital we often have situations when patients with curable acute illnesses are unable to get admission because there are patients with no chance of recovery occupying and acute care bed. This is most often because the patient or family has unrealistic expectations. Have Dulle and Smith looked at the problem from the perspective of the patient who has to be denied or has a delay in their treatment because someone else is receiving futile treatments?
Providing comfort care to some who will not recover is not abandonment but compassion. Almost always such futile treatments prolong the process of death, they do not prolong life.
This recommendation is not rationing but an attempt at proper utilization of resources. It is necessary whether in Canada (Socialized medicine!) or with HMO’s. Even with regular insurance the premiums increase for all because some individuals feel their wishes and hopes are more important than the needs of others. Rationing only means a more equitable distribution of resources.
Smith’s concern about marginally beneficial care also needs scrutiny. The example of the mammogram of an eighty year old needs analysis. The advantage and benefit of the mammogram is that it may diagnose a breast cancer a few years (5-7) before there is a palpable lump. If the patient has a life expectancy of five years, the mammogram offers no benefit. In fact, it causes the patient to undergo a treatment and suffer the anxiety of a cancer diagnosis which would have had no impact on her quality or quantity of life.
Doctors and hospitals make money from ICU’s and other cost centers. Yet, they try to restrict such treatments because the treatments only hurt the patient and the family.
I would very much like to continue the dialogue with Dulle and Smith.
Aroop Mangalik
amangalik@salud.unm.edu
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February 27, 2008 at 6:06 pm
Aroop,
Thank you for chiming in. You said the premise of FCT is wrong, but then went on to defend it. Either you mis-wrote, or you misunderstand the premise of FCT: medical professionals (rather than families) have the right to deny medical care to cognitively-impaired patients (at least that is what it is limited to presently) on the basis of utilitarian concerns (usually financial), as well as a value judgment about the quality of the patient’s life. Clearly you affirm this premise.
I do not doubt that the motives of FCT adherents are good. The question is whether the premise under which FCT works is philosophically sound, good for the patient, and good for society. I would argue that the “quality of life” is a poison pill. It suffers from the problem of authority (who gets to define what a quality life is) and a deficient view of humanity (equating human value with human functioning—as function decreases, so does value). Humans are not valuable for their function, but for the kinds of things they are. Much could be said about this, but I will refrain.
There is no question that there can come a point at which care is futile. For example, it is futile to keep a brain-dead individual on life support. In this case, the person is dead, and no amount of medical care can reverse this. But proponents of FCT broaden the category of what counts as futile care to include those who are severely impaired, but not dead, and not dying. For example, caring for someone in an irreversible coma would be considered futile, and care would be withdrawn (a simple feeding tube), not because they are dying, but because they are not dying! How severely disabled does one have to be before doctors decide their life is not worth living?
You wrote, “Providing comfort care to some who will not recover is not abandonment but compassion. Almost always such futile treatments prolong the process of death, they do not prolong life.” Again, to my knowledge FCT is only being applied to cognitively impaired people, and these people are not in the process of dying anymore so than you and I are in the process of dying. They are simply not aware of where they are at in the process (or so we think—there is a lot of evidence that people are conscious but not able to express themselves to the outside world). So it is not true that FCT is prolonging the process of death. It no more prolongs the process of death than any other form of medical treatment does for those who are not cognitively impaired (e.g. medication for diabetes prolongs death). Besides, as Wesley Smith says, “Dying isn’t dead: It is living.”
You should also consider that the decision that care is futile could be mistaken. There are many documented reports of people diagnosed as being in a vegetative state or irreversible coma, who regained consciousness.
You said FCT is not “rationing”, but “an attempt at proper utilization of resources.” Please explain the difference. When the driving reasons for FCT is a limited supply of resources, how can this not be considered the rationing of care: deciding who and who does not get it?
I am shocked at your statement, “Even with regular insurance the premiums increase for all because some individuals feel their wishes and hopes are more important than the needs of others.” Are you faulting people for seeking out medical care because they value life, including their own? Do you suggest that people with terminal illnesses refuse medical treatment? If not, then what are you faulting them for?
The bottom line is that we are dealing with human beings, and human beings have value. They should be treated a certain way, even if they are damaged, and even if that damage is permanent. FCT undermines this.
Jason
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